Gotta tell you that I feel horrible. The nurses are so cheerful saying "yep! that's exactly where you are supposed to be." I can't think about more than one day at a time or I may jump from the windows. I try to remind myself it is cancer I am trying to get rid of and it won't be a walk in the park.
Today I got a morphine pump to help with the general pain and the pain caused by losing the lining in my mouth and esophagus. It is a small dose and shouldn't leave me with pink elephants in the room. I am hoping it will allow some good sleep tonight.
We have a few more hours to kill before bedtime. We're going to try Grey's Anatomy as a new show (I've never seen it). I'm also taking suggestions on a good day time soap.
Thanks for the comments and emails. They help brighten these long days.
This blog was started in Jan '07 as a way to update family and friends on my fight against relapsed Hodgkins Lymphoma. I underwent chemo and a stem cell transplant at Sloan Kettering in 2007 and then spent six years in remission. The blog went dormant as life became less about cancer and more about living. Now I am facing Acute Myelogenous Leukemia (AML) that has developed from previous chemo. So I have dusted off the old Blog (still very un-tech-savvy). Time to get up and fight again!
4 comments:
Rachel,
Hey there, girl. You can do it...you really, really can! With God holding your hand, you will make it. Don't even think about that pesky calendar. You're right to just take it day by day. Let me pray for you right now. Father, be with my Sister Rachel. Fill her with your Holy Spirit in order that she stands in Your strength. Your presence is fully welcomed in that hospital room. In Your own special way, let Rachel and her mom know that You are there. Keep their spirits lifted. In Your name I pray. Amen.
Love and Hugs,
Stacy
Hey Rachel,
I hope that Grey's Anatomy was distraction enough for you...I'm a huge fan and it certainly distracts me every Sunday night :-). My other 'can't miss, put a tape in if I'm going out' shows are "House" (probably a bit hospitally and gloomy for your current situation), "Heroes", and of course all the CSI's and Law and Orders, especially if you missed them the first time around.
Wow - I DO watch a bit of TV don't I!!!!
Day time stuff I can't help you with I'm affraid....the odd "Opera", and cartoons are all we get to do.
Hang in there with your morphine (pink elephants would certainly be a way to pass the day!?!?!), and it will be time to do a "Day +4" posting and report on how much better you're feeling before you know it.
Lots a love - Div
Dang Girl,
The lining in your ...gross!
Morphine can be your friend and it sounds to me like it's time to get friendly! I was trying to think of some skills you could sharpen while your on morphine. Darts....no mabie not just yet.
Corn Hole. This is a great game. We play it at home and you would just need a mini version. You have four bean bags-usually fillied with popcorn but not required. And you toss the bags into a hole or onto the wooden board the the hole is in. You gets points if it stays on the board and big points if you get it in the hole. Hmmmmm, how could we get you and you mom a mini version that would work in such a small place and not ....yea ok.How about this a bannana boat. You take a bannana. Dang girl darts are sounding better and better. Mom says the best daytime show is the Young and the restless...sound like your show! Hee Hee. Comes on at 12:30 here and mom says if you miss a show it's ok you can catch up next time. I really love Americas funniest videos. When Bob and I were struggling with everything that show really helped us. It's real and silly. I did not watch the news. If laughing doesn't hurt I reccomend Aunt Lois go get some clean comedians videos as well. I can't wait for you to see our new blob on the lake! You should be able to launch my neice or my nephew right into the lake no problem! And then comes your turn!
Bob and our entire broad went to a town meeting today to Thank Congressman Cliff Sterns for staying on top of the FBI's fraud unit until we get our restaurant back. We had thank you signs and gave his assistant flowers. He really seemed happy and many people loved the six young adults we brought with us to the meeting. I hope all this painful junk goes by fast and you can get over here to the lake for a LONG visit. I have a hammock with you name on it!
Oh yes I have a joke for you. This man and this woman go to an antique shop and buy an old vase. The next day they were cleaning it up and polishing it and all of a sudden a genie appeared. I have been in the vase for 2000 years. I will grant you each one wish and then I must return for 2000 more years. The wife says a cruise, a cruise! I want everything I need to go onto a very long cruise to some place exotic. I want passports,flights,room reservations, cruise tickets, everything right here in my hand. Poof! The genie granted her wish. She was so exited she went right to the phone to call her sister and tell her the news! While she was gone the husband begins to wisper to the genie. I want the same thing. Going on he cruise and all. But I want to go with a women thrity years younger than me and I want my wife to forget this whole thing with this wishes ever happened. Poof! The genie aged the man thirty years and returned to his vase. Hee hee. The congressman told that joke today right before everybody left.
Hi Rachel, sounds like you are on your way now! I can't imagine what you are going through but this blog really helps. I don't know if you are up to it but here are a few things to help pass the time. Go to pogo.com. There are some fun, time consuming games to play on there. I like the Heavey Cannon. Also, it you like Sudoku go to websudoku.com. I can play on that for hours for its challenging. Please know you and your family are in our thoughts and prayers. Love, Kim
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